Posted on January 28, 2012, Updated December 18th, 2014
A very good long-term friend suggested that I start this blog. I suspect that a couple of other friends may have suggested it before and I was just too good at changing the subject! But she must’ve got the timing just right as here I am!
Despite having CRPS(Complex Regional Pain Syndrome) for over 14 years and developing other autonomic dysfunction (dysautonomia) issues along the way, I firmly believe in hanging on to who we are despite the massive changes that chronic illness creates. Core identity, like my morals and loves, are easily unchanged. But a lot of who we are is wrapped up in what we do. And when we can no longer do what we used to, things can get tricky. But it is work-able. Honest, guv’!
It’s about hanging on to who you are in your head and your heart. We may not all be able to get out and party, but we can keep silliness and self-expression in our lives. If I have mundane, pain-filled days it gets me down. I need some silliness and laughter to pick me up again. It doesn’t matter if it’s mis-hearing an advert and laughing out loud, playing a computer game, planning something silly for when I’m less painy again, having a silliness fuelled chat with a friend on Skype – anything that is light-hearted and doesn’t involve moving at the time. We have enough to deal with as it is so it’s always good to have a distraction and a chuckle when we can.
In this blog I write about living life despite the Auto Gnome. I write about tips, achievements, different approaches as well as bits of medical info’ and research; I write occasional silly poems and have a tendency to share my Tai Chi experiences along the way, too. My fellow patients are totally awesome, and I wanted to share some of my knowledge and experiences whilst having a bit of a chuckle along the way. Because silliness rocks. (And so do cups of tea. – Yep, I’m British! 😉 )
So here’s a few links to get you started, I hope that these can be of use, xx
CRPS Frequently Asked Questions (FAQ)
– also a lot of Dysuatonomia relevant info’ in the FAQ too
Oh and silliness, let’s not forget the silliness…