(You can also search for blog posts by theme – just go to the Home page and scroll down the right hand side panel… not too far down is a ‘cloud’ of themes titled “smokin’ tags”…. if you click on the tag/theme you are interested in… all blog posts with that tag will come up in a search. Then just scroll down the posts in the search results, x)
Below is a chronological list of blog posts – the most recent is at the top
Misinformation in legislation will massively impact trans kids in the UK
Trying the functional medicine option
Dark Light – A poem, and why I am currently looking at alternative medical thoroughfares
Why can’t some people safely mix yet? – Re Covid. It’s hard for us to explain the complexities of our conditions and why we’re so different from the general population. I hope to help a little with that…
The Screaming in my Head – erm, literally that. Anecdotally I have found that many patients have something like this happening that they have to try and function around when pain levels are high.
Some tips for dealing with isolation – written for healthy peeps having to cope with the isolation effects of enforced lockdown
Why healthy people’s panic responses to COVID-19 perplexes the chronically ill
My phenylalanine experiment – No motivation is very (very) out of character for me and it’s coupled with a severe lack of processing, memory, sleep, less appetite and an abundance of utter confusion. So this is my experiment to see if a supplement helps me as my diet no longer has the food sources in it.
The chronic illness Christmas card paradox
1-10 Pain Scale descriptors for patients and doctors
Trauma in a faulty nervous system – A faulty nervous system reacts differently to trauma. Treatment needs to reflect this..
Coping with ‘still’ being disowned
Blog hiatus after having to give up the house we were buying, searching and eventually finding another home, buying it, moving home and getting through the initial stages of doing it up.
CRPS Awareness photo challenge: time
CRPS Awareness photo challenge: flames and ice
CRPS Awareness photo challenge: my firey flaming CRPS ribbon
CRPS Awareness photo challenge: fear and coping
CRPS Awareness photo challenge: regained
CRPS Awareness photo challenge: happy
CRPS Awareness photo challenge: a pain aid
Yes I still exist (honest guv’)
Blog hiatus whilst sorting house to move home, packing a bit a day for months, finding a place to buy.
Send in the clowns (New Years Eve)
Totally Tubular (Dumbarse) Tuesday!
Loss of a friend and raising awareness
Suicide, the difference between wanting to kill yourself and wishing you didn’t exist
Interpreting new medical information
One of those weirdly surreal days
Autonomic stabilisation (attempt #3)
Tai Chi and adaptive Kung Fu update
Joyful moments from 2013 – the ‘Jar of Joy’ experiment went well 🙂
CRPS – Frequently Asked Questions‘
Keep a Pharmacist in your health loop
Changing cars (with incidental comedy headrests)
February, March, April & May 2014
Blog hiatus whilst creating CRPS FAQ for support group, is also available here
NB: also a lot of relevant links in the FAQ for Dysautonomia
Momentous occasion…. Elle and the Auto Gnome is 2 !
Ankylosing Spondylitis on the McGill Pain Scale – as requested by a reader
Raising CRPS awareness: ‘adverts’ and Crazy Sock Day
Sparkling determinedly for the New Year
Raising awareness through the awards programme, x – WEGO Health Activist Awards 2013, voting ends December 31st but you can help by clicking on the ‘endorse’ button for bloggers (link to the award nominees’ directory in this post)
Friends in my laptop and the festive season, xxx
A quick, easy and bargain way to make a difference – used stamps for charities
Festive physio’ stole all my spoons!
It’s health activist nominations time!
An informal International network of CRPS patients (Posting on the same theme, on the same day, as some other CRPS bloggers)
Kung Fu achievement! (Yellow sash)
Something I didn’t think I could do (Photo Challenge)
Three quotes, possibly not the sort you’d expect! (WEGO Health’s challenge for the day)
An Inspiring Friend (Photo Challenge)
It’s not all in your head! (Photo Challenge & WEGO Health’s challenge for the day)
Healthcare wishes (Photo Challenge & WEGO Health’s challenge for the day)
Taking ownership (WEGO Health’s challenge for the day)
Introducing Signage Seymour (and a wobbly guy) (WEGO Health’s challenge for the day)
I think I can, I know I can… (Photo Challenge & WEGO Health’s challenge for the day)
Momentous occasion…. twice as many visitors in 2013 than in 2012 already!
Introducing myself… (Photo Challenge for CRPS awareness)
. Momentous occasion…. 150 lovely people following my blog.
Thoughts on the international disability access symbol
SSRI stabilisation effects on the autonomic nervous system, and my muscle tension side effects
Hypermobility specialist appointment
Invisible Illness Week: my 30 things
CRPS patients and dentist appointments
Ev’rybody was Kung Fu Fightiiiing – I got my white sash in Kung Fu!
Inspiration – the article I wrote for a book on inspiration for CRPS
Cluster migraine, a moment of painy poetry!
On foot or flying? – a silly pic
Burning feet, orthotics, sandals and some magic!
Housewifey organisational dilemma (where’s my birthdays book?)! – poem
Mission accepted. The search in town…
. Momentous occasion…. 500 blog post ‘likes’! Thank-you, x
Photo Challenge for CRPS Awareness, Day 30 – a pic’ of me waving
. Momentous occasion…. twice as many visitors in 2013 than this time last year!
Photo Challenge for CRPS Awareness, Day 29 – Tai Chi with walking stick! 😉
Photo Challenge for CRPS Awareness, Day 28 – my pain heroes…. that would be my fellow patients 🙂
Photo Challenge for CRPS Awareness, Day 27 – something I am proud of – studying
Photo Challenge for CRPS Awareness, Day 26 – shared laughter
Photo Challenge for CRPS Awareness, Day 24 & 25 – a pic’ of my fave snack & a pic’ of my day
Photo Challenge for CRPS Awareness, Day 23 – awareness / creativity. Still being me.
Photo Challenge for CRPS Awareness, Day 22 – my smile and what it represents, it used to be a shield
Photo Challenge for CRPS Awareness, Day 21 – pain of loss through misunderstanding
Photo Challenge for CRPS Awareness, Day 20 – somewhere I would like to travel to
Photo Challenge for CRPS Awareness, Day 19 – A picture of my family (relating to many patients’ loss of family)
Photo Challenge for CRPS Awareness, Day 18 – a picture of my CRPS (I created a yin and yang piccy out of words that relate to my life with CRPS)
Photo Challenge for CRPS Awareness, Day 17 – something that’s made a huge impact in my life recently (my Tai Chi physio’s leading to national gold medals)
. Momentous occasion…. that was the 100th post! Blimey!
Photo Challenge for CRPS Awareness, Day 16 – someone I am inspired by
Photo Challenge for CRPS Awareness, Day 15 – something I want to do before I die
Photo Challenge for CRPS Awareness, Day 14 – someone I can’t imagine my life without
Photo Challenge for CRPS Awareness, Day 13 – something that helps me cope (console gaming 😉 )
Photo Challenge for CRPS Awareness, Day 12 – something I love (patient advocacy online)
Photo Challenge for CRPS Awareness, Day 11 – a picture of my pain (circle where it hurts, hehe)
Photo Challenge for CRPS Awareness, Day 10 – something I’m afraid of (picture of my wallet card information)
Photo Challenge for CRPS Awareness, Day 09 – a picture of gratitude in pain
Photo Challenge for CRPS Awareness, Day 08 – a picture that makes me laugh
Photo Challenge for CRPS Awareness, Day 07 – most treasured ‘in pain’ item
Photo Challenge for CRPS Awareness, Day 06 – something I’d like to trade places with for a day
World Environment Day and Photo Challenge for CRPS Awareness, Day 05 – something I wish I could change
Photo Challenge for CRPS Awareness, Day 04 – favourite song that helps me get by
Photo Challenge for CRPS Awareness, Day 03 – a picture of something that makes me laugh
Photo Challenge for CRPS Awareness, Day 02 – a picture of my comfort item
Photo Challenge for CRPS Awareness, Day 01 – a picture of me
Thank-you ‘Blogging’ for choosing to feature Elle and the Auto Gnome, x
Conference presentation on wheels
Neuro-vascular autonomic consultant in London
Tai Chi physio’s, a gold medal, and being proud of our achievements
Patient contact and self-advocacy on Social Networks
If CRPS was an animal… (tee hee)
If I could do anything as a Health Activist…
“Useful Links” page for fellow patients
Your certificate of awesomeness…
WEGO Health Activist Writers’ Month Challenge 2013
Create your own personalised pain scale for better medical info’ (includes link to some superb templates for creating your own pain scale)
Happy 1st Birthday to the Elle and the Auto Gnome blog!
Crazy Sock Day! A CRPS & Gastroparesis awareness day… with Crazy Socks 🙂
A Jar of Joy! (a way to store our joys and re-live them to ease the next New Year struggle)
How to stop laptops from falling on your head (for those of us who want to use out laptops whilst lying down)!
WEGO Health Activist Nominations
Always get copies of your hospital notes
Remembrance Day for the UK Disabled Dead
If I could accomplish one thing in 2013….
Soapbox and Superheroes: living at the centre of our medical info’ web (getting medical notes from UK hospitals)
The necessary addition of a Mary Poppins or TARDIS bag
Something I’d like to find out about… (…sciencey electrical/magnetic energies from a Tai Chi perspective)
The weirdest thing about my health… (the variability of my conditions)
National Health Blog Post Month
Nominated for WEGO Health’s Rookie of the Year award!
The mystery of the balloon-inducing insects (oedema, swelling, insect bites)
McGill Pain Index, CRPS and Fibromyalgia
Disability protest barely covered on the news
Supportive friends and my thematic writing style
Birthday treats and problematic food
More sharing of my disability article, thank-you again, xx
Sharing of disability articles and information, thank-you, xx
British disability benefits, shockingly shameful behaviour
Olympic torch relay comes to an end
Awareness ribbon prettification
CRPS Olympic torchbearer and her faithful companion
Open University “Blog of the Month”, awwww, x
Amazing CRPS patient carries Olympic torch today
Studying with a temperamental brain
What I take with me to my doctors appointments
10 things of great value and assistance to me
Olympic torchbearing for Dysautonomia
A non-neuro neuro? It’s probably quantum
A productive day (and I know where my towel is)!
Olympic Torchbearers Relay 2012 (The relay around the UK began on the day I posted this)
Audience participation: a shared experience
My Gnomic adventure in pictures
Writing Challenge takes down health-blogger in just 7 days!
Temporary cyborg and wearer of an invisible (purple) cape (my visits to cardiology, & what a tilt table test is)
Pictorial beauty and magical moments
What superpower would I choose?
Comedy outcome of crossing the loud-music event-horizon
Made-up superheroes valiantly defeating insomnia…Daahn…da…da…daaah!
Of computer-housed friends, creaky holidays and tea-making superheroes!
The Hungry Bear that Lurks in my Coat-Cupboard! (‘fight or flight’ problems)
(blog went ‘live’ on 29th January)
(whilst still setting up the blog offline)
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