Photo Challenge for CRPS Awareness, Day 28

A Day In My Life Photo Challenge for 30 Days Of RSD/CRPS Awareness, June 2013

Day 28 – A picture of your pain hero


My fellow patients are my pain heroes – each of you are phenomenal.

To combine a piccy of my fellow patients means combining varying aspects of life.. some have kids, some have a pet, some spend time connecting with and encouraging others through the woooonderful internet, and more besides. This picture is not what any one of my pain heroes does, but it is intended to represent some of the things they somehow manage albeit in small chunks of activity. And it also represents the lack of ill health apparent to others. Most healthy people would have no idea that anything is amiss in this pic’. All seems well and the girl is even smiling. But we know what the girl in this pic’ is feeling.. the pain levels, the vibrations from the kiddy-feet thrumming on the back of the sofa, the weight of the laptop on the legs, the fact that the superhero suit is round the corner and just out of reach! 😉

my pain hero!

What you, my heroes, deal with day to day is indescribable. And you’re still you. That totally rocks! You totally rock!


Your certificate of awesomeness…

WEGO Health Activist Writers’ Month Challenge, Day 3:
“Post a picture that symbolises your condition and your experiences”….



This award is for you, for our condition and our experiences, the space is for your name….


Elle and the Auto Gnome blank certificate



What superpower would I choose?

Hang on, what am I thinking? After all, I am ….dahn-da-da-daaaaah…..Gnomes Bane…..!

My superpowers include (nearly) endless patience, powers of remaining upright using messages from my Tai-Chi-honed leg muscles (when my head tells me that I should be falling over), very high levels of pain tolerance, and an almost unshakeable determination to keep going no…matter…what….(gritted teeth)!

Gnomes Bane (chortle)

What? They’re not actually superpowers?

Okay, okay. Let me think. Er, we-eeell,…. I do have a mutant extra set of wisdom teeth! (Not all of which have yet completed their attempts to push their way through the other teeth that are sat right in their way). I don’t know what extra wisdom teeth would enable me to do if I was an X-Man, (er, X-Woman? X-Person?), though. I’m not currently aware of any super-wisdom effects. Although I am still fighting to think and write through bemusing brain fog, so…maybe?! 😉

So, if I could have a ‘proper’ superhero power, what would I have? I can’t help but automatically opt for the self-healing one out of sheer necessity, really. But that’s so disappointing because it feels like I’ve had my superpower choice taken away from me. Everyone else would be wishing for an actual superpower and I would be wishing for something to enable me to function, which has the devastating (though arguable) side effect of also giving me life beyond all the people that I love. I don’t think that even the power of self-healing cuts the mustard in that case. Maybe all of us spoonies could wish ourselves well, and then spend our newly extended lives hanging out together and getting wise? (‘cept, of course, I’d have a headstart on that one, what with my mutant teeth and all)!

If I could have completely free rein, I think I’d go for telekinesis. That covers loads of superpowers in one. I wouldn’t just be able to move metal, or water, or rocks. I could manipulate any material….. Just think how handy that would be if I’ve locked myself out. I could just make the lock open. I could carry the shopping with ease. I could wash the dishes from a distance whilst I put my legs up to rest. Hell, I could float myself about between physio’s and save myself the legs pain. I could even float myself about whilst I’m horizontal so that I don’t have the near-faints! (I love the mental image that conjures up)! 😀

No longer would I be flagged as a lone, disabled woman if I have to phone for car breakdown service. Wheel needs changing? No problem….(screws up face and points a claw-shaped hand in the right direction)….there…sorted. And off I trundle. Wait a minute….I wouldn’t neeeed a car!

Yep, telekinesis would be cool. I wouldn’t be ‘normal’ as such. But I could potter round doing normal things, albeit in very unusual ways. The locals would have to get used to me floating horizontally round the supermarket. But seeing as I could be so helpful to them, perhaps they wouldn’t mind too much! And if they’re all busy checking the saleable goods by looking through the packaging, being part crocodile, and bursting into flames, I don’t think anyone would notice me floating surreptitiously by with a little smile upon my face, anyway.

I’ll get the cape ironed. I like this idea!


Made-up superheroes valiantly defeating insomnia…Dahn-da-da-daaah!

I was up late and drawn back to the ‘create your own superhero’ website…I decided that, despite the advice of ‘The Incredibles’ Edna Mode…Super-Elle should try out a cape…..

I suppose that really the inky-black sword is Gnomes Bane. So this must be Super-Elle, or the CRPS Avenger, or the Dys’….er….Dys’-tiller (?!) or sumfink. Yep, I was lacking in sleep, can you tell?!

And here is the fabulous Edna Mode, daaahling…

Did you know that there are some CRPS patients out there who use ‘RSD Angel’ as a reference? The patients strive to be the best they can despite their crippling pain levels and, frankly, anyone in that situation needs a bit of recognition and a bit of a lift or else keeping going under those circumstances gets really untenable. So why not lift each other with something like a reference to them being an RSD Angel. If it helps, it’s worth it. So anyway, yep, you’ve guessed it, I decided to create my own CRPS superhero styleee angel, hehe. I’m about 12 years old inside my head, aren’t I?!  😉

And then, just coz it was nearly midnight and I needed to keep doing stuff for a bit longer to beat the insomnia, I created Billy, too. She’s rock ‘ard, by the way…

Wee-eeell, once I’d given the superhero some eyes, a nose, etc.. it was quick and easy just to change clothes and colours. And with very little brain usage… hence the helpful assistance with the aim of trying to get sleepy.

I got to sleep really quickly after this. Not sure that it should be a regular thing.. I’d end up with every possible superhero filling up my hard-drive if I did that!

Go-awn, you know you want to! ….

Super-gentle hugs from me, x