Photo Challenge for CRPS Awareness, Day 04

A Day In My Life Photo Challenge for 30 Days Of RSD/CRPS Awareness, June 2013

Day 04 – A picture/video of your favorite song that helps you get by

Ry Cooder

My go-to song for calming the nervous system is Ry Cooder’s version of ‘Dark is the Night’. It’s a slow acoustic blues with some gorrrrgeous slides in it (yum)! In fact, that was what I was playing before performing at the Tai Chi tournament on Sunday because I didn’t want slight nervousness to become wildly exaggerated by my faulty ANS as then I’d wobble on my legs, my hands would shake, I’d get light-headed and woozy, and I’d produce a much lower standard performance as a result.

It worked, too! From now on – blues before a performance 😀

It’s not available on You Tube to share (or at least, it’s not available in my country according to You Tube so I don’t know where it is or isn’t available), there’s some covers, but I love Ry’s version so much that they’re just not the same 🙂

Ry Cooder and Vishwa Mohan Bhatt

It’s all over so quickly though and, unless I want to keep playing it on a loop (which I did for a while on Sunday!), I love a bit of Ry Cooder on blues guitar playing ‘Ganges Delta Blues’ with Vishwa Mohan Bhatt on sitar. Scrumminess for my ears and soothing for my nervous system, perfick!

blues guitar

And if I need a joyous lift? Well, as I am getting more noise sensitive as time goes on I can’t turn to my rock and metal the way I used to. Oh, and the fact that the house has walls so thin that us neighbours here can here each other cough, sneeze, laugh etc so driving them barmy with metal didn’t seem too wise anyway 😉 So how about some Florence?…

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My theme tune

Despite spending the majority of time on my own it’s not actually a quiet life. If you were in the house with me you’d probably not know I was there, except for the occasional conversation with myself and the sound of the kettle going on! But in my head there is music playing a lot of the time. And when there isn’t music there is incessant jibberjabber, thoughts parading round my head, problems to be solved, ideas of things to do and to write about. It’s very busy in my head, and definitely not quiet!

With all this hubbub and music I should probably stretch to having my own theme tune. I wonder what that would be?

If it was a theme tune for the CRPS I reckon it’d be a proper old-style blues track….

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.                   …DAAH…

.                                                                                ..DA…

Da…                                       …DAH…                                                ..da….

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I woke up this morning….

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.                   …DAAH…

.                                                                                ..DA…

Da…                                       …DAH…                                                ..da….

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Still got CRPS….

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.                   …DAAH…

.                                                                                ..DA…

Da…                                       …DAH…                                                ..da….

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I’ve run out of teabags,

And the RAAAIIIN is coming down…..WOOAAAH yeeaaahhh…!

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It’s not unusual for me to start singing the blues riff because I quite often hear the words ‘I woke up this morning…’ come out of my mouth, and the blues riff is the natural follow on! Which then results in barely awake Magic Dude listening amusedly to an impromptu made-up song about whatever it was I was going to tell him!

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If I was going to pick a theme tune for the Dysautonomia it’d have to be something that fits in with my brain fog. Something where everything is weird, wobbly and incomprehensible, but at the same time any negative aspects pass me by so that I just drift along thinking everything’s bound to be A-OK if only I could find my brain. And with that in mind, this eclectic ditty leaps to the forefront of my thoughts….!

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Hehe, that’s a tune from my childhood and I suspect that I shall continue to find myself periodically singing it for the rest of my days! 😉

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But essentially, and overall, the most important thing is to find yourself, find your drive, and keep your own life moving forward in any way that you can. Advice from others to those who have chronic health conditions is often along the lines of ‘just think positive’ without bearing in mind just exactly the array of counterbalancing issues that there are to contend with. Yes, we can be positive, but everyone has down moments, everyone is only human. And it’s that beautiful, rough raw spirit that deserves to get acknowledged. No-one should be viewed as any less a person for not being positive aaall the time. Better still to acknowledge the true strength and beauty of the characters in this world who keep going despite the negatives. Who find the will to take hold of that steering wheel and allow themselves the space to just be.

And with that in mind, I shall leave you with this…

.

x

Comedy outcome of crossing the loud-music event-horizon

After valiantly creaking home in slow-motion from the asthma-clinic appointment that I’d forgotten all about and therefore not included in my morning physio’ (doh!), I allowed my legs to pretend to be heavy leaden things. I left them to it on the proviso that they were not to introduce manic pain levels because I was ‘being good now’, honest! So I sat at the laptop waiting for my body to get happy enough for me to think more coherently, whilst enjoying a friend’s nutritional advice on the health benefits of biscuits and booze!

I eventually ended up writing about something I enjoy, which keeps my muscles more relaxed and so will hopefully reduce the level of the, now imminent, pain flare-up.

Lovely.

Then…..at half three in the afternoon….with the sun streaming in, and the open window letting in the fresh air and the birdy/traffic/sort-of-strange-chopping noises from the Urbanised Great Outdoors…..my neighbour came home and decided to demonstrate their ability to feign hosting a party for stressed out, anxious people with jack-hammers.

It probably sounds like music in their house. And I’m sure they’ve had a long day at work and all…..but…..the bass noises sliced right through my brain! Not because of any migrainey tendencies today, just because it was distracting erratic bass noises interrupting my thought patterns. I had to give up writing.

So….I decided to introduce my neighbour to Machine Head’s latest! Anyone that’s ever dabbled in rawk music should give it a whirl.

I knew it wouldn’t be long before my noise sensitivity caused me to turn it down again but, as I couldn’t stand up or walk at the time, it was a quick and easy way to let them know that someone was at home! They’re a nice couple, we each know how much noise travels through so we just let each other know that we’re at home and it’s all fine. (Unless they’re having a party, then Magic Dude and I end up wearing our best sad-faces and reaching for the ear-plugs).

I surprised myself, though. The sudden change from gentle outdoor sounds to rockin’ guitar had an immediate effect on me in a rather epic manner. I went from being a quiet and responsible blogger, to….

….wearing an idiotic grin whilst attempting a whiplash-flare-avoidance version of head-banging and waving my ‘devil-horn’ hands at the ceiling in grinney-happy defiance!

All whilst stuck in bed, legs totally immobile and buried under both duvet and laptop table!

Yep, I'm probably too old and creaky for this, but it made me larf!

Yes, I am Elle, I live with the Auto Gnome, and I have a problem, hehe…. I lurve my music!

It makes my soul sing, my mouth grin, my eyes twinkle, and I feel all kind-of excited inside my chest whenever I get to turn the music up. Infrequent and rare as those opportunities are. Perhaps that’s why it has such a strong effect!

Once I cross over the loud-music event-horizon the behavioural outcome is likely to surprise anyone unfortunate enough to witness it!

Ahhhhhh, but I feel soooo much better for that! And I’m only on track 3!

Music is good for my soul!

Not everyone likes to rawk, so here’s the chilled out acoustic version of ‘Darkness Inside’. I don’t usually pay much attention to lyrics, it’s the sounds that make me smile, but this one is about how music can fill our souls and set us free. Ahhhhh, x

Of course, if you’re really intrigued about the original version, then here it is….

It’s turn-it-up-and-shout-along material, hehe

x