I like to be useful!

I’ve had a huge spike in blog visitors over the last few days and the popular post getting viewed a lot has been my representation of the McGill Pain Scale. My version is unusual because I’ve added an additional figure onto the scale – that of Fibromyalgia. It’s not a figure that we usually come across, and I found the information in one research paper which means that it’s a ball-park figure (only one sample group from one piece of research) but can still be helpful to some patients to share with others as many people still incorrectly think of Fibro’ as some sort of psychosomatic condition. It’s not. At all. There is plenty of scientific evidence to show to any doubters, but sometimes being able to show a quick piccy of the pain scale to demonstrate that the pain is scientifically ‘real’ can be a speedy and simple way to help someone to re-jig their understanding and treat Fibro’ patients with more thought.

The post is by far the most popular one to date (it includes CRPS as well). I am so pleased that fellow patients out there are finding it helpful. That is why I started this weblog in the first place, to share information and be as helpful as I can from my spot on the sofa with my laptop and my occasional brain!

I didn’t realise that a link to the post had been included on the Fibromyalgia News website, though. Not until yesterday, that is. Wow! Thank-you. That is good feedback suggesting that I’m on the right tracks and am managing to be useful. Exactly what I hoped I could do. 😀

There’s lots more to write about still, I shall keep on writing for as long as I can still be useful. Big hugs to you all, x

2013-10-27, Fibromyalgia news

2013-10-27, Fibro news

McGill Pain Index, CRPS and Fibromyalgia

Pain is a subjective experience. It is difficult to comprehend other people’s experience of pain without having a way to somehow compare pain levels. So, back in 1971, Ronald Melzack and Warren Torgerson published a paper showing a way they’d devised to do just that. It was the McGill Pain Questionnaire, (named after McGill University which they attended in Montreal in Quebec, Canada).

The McGill Pain Index that resulted from the questionnaire is not just a number on a scale. Each number, representing the pain level of an injury or condition, is compiled from lots of data which includes numerical scores as well as descriptive words which patients have used to answer various questions about their pain experience. The various components have been assessed for additional aspects such as consistency. This scientific scale has been rigorously tested over the years and has withstood all tests into reliability.

So it’s a really useful tool to get our heads around pain which we may not have experienced personally, and for putting our own pain into some kind of perspective for others.

There are several versions of the scale diagram visible on the internet which show the placement of various injuries and conditions on the scale of 0-50. But with the copyright issues online it is difficult to know which ones we can share.

So, with that in mind I started creating my own diagram from the scientific information which is readily available. There is an extra addition to my diagram, however, as I found one research paper which had used the McGill scale to assess pain levels for their participants with fibromyalgia, and I feel that this is important to include as it is another variable pain condition which many people are not really aware of. The research paper found the fibro’ patients’ pain levels to be at 29 and 30.

Here’s hoping that the diagram can help to reassure some friends, families, employers, teachers and so on that their CRPS and fibromyalgia contacts really are living with a genuinely high level of pain.

I will also upload my diagram as a photo’ on the Facebook page, and I’ll even create some different background colours that you can choose from. 🙂

Here’s my little diagramatic piece of techy(ish!) artwork…

McGill Pain Index, final

Although I have a copyright banner on this blog to protect my words and thoughts, and some personal pic’s, please be assured that if this diagram will help you then feel free to share it as that’s what I created it for.

Much love and best wishes from me,

x

References used:

Subspeciality Management, Anaesthesia  for Obstetrics, (for widely available information in usual McGill diagrams) http://web.squ.edu.om/med-Lib/MED_CD/E_CDs/anesthesia/site/content/v04/040302r00.HTM

Cork, R.C., Wood, P., Ming, N.,et al (2004) ‘The effect of cranial electrotherapy stimulation (CES) on pain associated with fibromyalgia’ in The Internet Journal of Anaesthesiology http://www.ispub.com/journal/the-internet-journal-of-anesthesiology/volume-8-number-2/the-effect-of-cranial-electrotherapy-stimulation-ces-on-pain-associated-with-fibromyalgia.html  NB: I’m only including this reference for where I found the fibromyalgia McGill Indexed data, I am not commenting on electrotherapy in any way

Melzack, R. & Torgerson, W.S. (1971) ‘On the language of pain’ in Anesthsiology, Vol. 34, pp 50-59