Photo Challenge for CRPS Awareness, Day 28

A Day In My Life Photo Challenge for 30 Days Of RSD/CRPS Awareness, June 2013

Day 28 – A picture of your pain hero

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My fellow patients are my pain heroes – each of you are phenomenal.

To combine a piccy of my fellow patients means combining varying aspects of life.. some have kids, some have a pet, some spend time connecting with and encouraging others through the woooonderful internet, and more besides. This picture is not what any one of my pain heroes does, but it is intended to represent some of the things they somehow manage albeit in small chunks of activity. And it also represents the lack of ill health apparent to others. Most healthy people would have no idea that anything is amiss in this pic’. All seems well and the girl is even smiling. But we know what the girl in this pic’ is feeling.. the pain levels, the vibrations from the kiddy-feet thrumming on the back of the sofa, the weight of the laptop on the legs, the fact that the superhero suit is round the corner and just out of reach! 😉

my pain hero!

What you, my heroes, deal with day to day is indescribable. And you’re still you. That totally rocks! You totally rock!

x

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Photo Challenge for CRPS Awareness, Day 16

A Day In My Life Photo Challenge for 30 Days Of RSD/CRPS Awareness, June 2013

Day 16 – A picture of someone who inspires you

As a chronic health patient it is now par for the course that I meet even more inspirational people to add to my list of ‘wonderfuls’ from over the years. There’s something about getting dealt crummy health that makes us fight harder, find the silver lining or, if it’s well hidden, create our own flipping silver lining! 😉

Today I choose to mention a fellow blogger who applies her love of science, her medical training, her experience living with CRPS and her superbly creative and wonderfully active mind to the big jigsaw puzzle that is CRPS.

Many of us live with the condition, many of us try to find out ‘what is what’ to help us work with our doctors to figure out how to treat our individual version of the complex disease. A number of us work to share the information we find to help our fellow patients, whether through friendships, support groups, blogging, information groups or websites. Not so many have the background, the determination and the sheer ‘non-specialist’ cheek to try to help unravel the mysteries of CRPS themselves. But, as I said in a previous post, is it exactly what is useful in what is effectively an informal, multi-disciplinary, international think-tank.

The blogger in question is Isy Aweigh. And she is one of those with the high level, expert-patient savvy and determination. One of those valued thinkers, and extra special for her loving heart. In short, she’s pretty darn fab’, (but seeing as she’s my friend perhaps I’m rather biased 😉 ).

She is fab’, though! 😉

Anyone who’s visited my blog before probably knows about my penchant for Tai Chi, and possibly even seen my post about my last tournament and what it means to me as a chronically ill patient. I tend to set my sights unreasonably high to see where I can get to, rather than set my sights lower and risk inadvertently capping my own potential before I’ve even tried. Well, Isy has done the same on a mega scale, and whatever the outcome is she will learn so much about what her body can be capable of, what treatments / recuperation techniques etc work for her body. And whether she marathons her way to the original goal, or whether the goal morphs into something different to accommodate new health info’, the experience will be a huge personal journey and deserves loud enthusiastic applause every step of the way. I for one shall continue to read the inspiring exploits and insights of my treasured friend.

Here she is, the one….the only…Isyyyyy Aweeeiiiggghhh….. (and Ari the cat 🙂 )…

Ta-daaaah!

This piccy is from Isy’s blog over at Living Anyway.

(Love ya, chick, x)