Raising CRPS awareness: ‘adverts’ and Crazy Sock Day

In the UK our TV adverts are meant to sell things. They aim to get us viewers to spend money on products, send money to charities or spend time watching certain programs.

So imagine our puzzlement when we come across fellow patients online talking about ‘adverts’ for illnesses! Our context is that adverts are to sell stuff, and our minds immediately boggle as we wonder what on earth someone would ‘advertise’ an illness for? I mean, who goes shopping for health conditions?! 😉

Well yesterday I fiiiinally found out what these are. They’re more like public service announcements delivering a snippet of information on a specific condition. They can’t squidge much into such a small space of time and, let’s face it, CRPS is so complex that a day at a conference wouldn’t cover it. So they have to go for a bottom line as the potential identifier. The RSDSA has done just this, the bottom line is that if we’ve had an injury with a disproportionate amount of pain then bear in mind CRPS. Here’s the new CRPS info’ video…

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And yes, it is Crazy Sock Day today, and I am wearing some knee high stripeys in honour of Melanie’s awareness day for CRPS & Gastroparesis. 😀

Crazy Sock Day 2014

And here’s the crazily socked feet of some friends as well….

Rory's Fbk offering

Jona's Fbk offering

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Happy Crazy Sock Day people, please do visit Melanie’s Facebook page and feel free to post sock piccies on there in support of her awareness event, 😀

x

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Crazy Sock Day!

Yes, you read that correctly… today is Crazy Sock Day, 2013! 😀

Crazy Sock Day 2013

And, yes… I am wearing my mismatched, loud stripey socks as I write this…

Crazy Sock Day 1

This is an event created by young Melanie Dickens to raise awareness about her conditions CRPS and Gastroparesis.

The premise is beautifully simple – wear crazy socks and when someone asks you why you’re wearing them you can tell them. Simple see? Go ooooon, you knooow you want to 😀

Melanie Dickens, Crazy Sock Girl, to post on blog with permission from her Dad Shawn, x

Super Melanie herself: Superhero and Gatherer of Excellent Socks
(picture posted with kind permission from Crazy Sock Girl’s Dad aka Super Shawn)

Here’s Melanie’s Facebook page created for this year’s piccies to be posted upon… https://www.facebook.com/CrazySockDay, and there’s plenty of piccies turning up on there already 🙂

There’s still time people, get your socks and cameras out and join in 😀

You can even post your own crazy sock piccies on your social network pages, that way your friends can see them and gain helpful awareness even if they aren’t online today.

It’s fun and it’s easy to do. I suggested this event to my friends and readers on Facebook. It’s something anyone can join in with, it takes very little effort and you don’t necessarily need to know loads about the conditions, it’s an awareness thing. It’s the amount of heart that you put into it that counts. If someone asked me why I’m wearing crazy socks then I’d most likely science them into a brain-overloaded stupor with my first coupla sentences! So trust me – you wouldn’t be bad at this at aaall.

So my suggestion to my friends (who I can’t expect to know aaaall about my health the way I do, of course!) was that it would be a great way to let people know that they can actively try to avoid getting CRPS themselves (hurrah! fantastic knowledge for friends and loved ones) by taking vitamin C after any injury or operation (see the top of this page for more info) and also by not putting ice straight onto their skin (always wrap it in something like a tea-towel) and vary it… on for 10 minutes, off for 10 minutes, and so on (as ice switches off part of the autonomic nervous system if the skin temperature drops below a certain point and when it’s switches back on again that’s when the troubles become apparent. See? Science-induced stupor alert. Somebody stop me! 😉 ). (For people who already have CRPS, well, we steer clear of ice altogether as it’s really baaaaad news for the majority of us).

Crazy socks *and* tea, could this day get any better?

Crazy socks *and* tea, could this day get any better?

My lovely Magic Dude good naturedly takes his role as Back-up Blog Photographer all in his stride. Although I do get a few funny looks when I ask him to take a piccy of me looking slightly, erm, unusual! And that little amused look cropped up when I calmly and seriously donned my kinda-sock-hat-thingy! 😀

Crazy sock hat thingy and tea

Erm… yes, well, it was a thought. Don’t think it’ll catch on, though.

I don’t usually get to go out on a Thursday. Wednesday I’m at home recovering from my Tai Chi clas on Tuesday, and then Thursday I’m at home preparing to be able to get to Tai Chi on Friday. So there’s no-one to ask me about my socks today, even the postie had no reason to knock on the door and get sock-blinded! Good thing I can wear them on here as well, then, eh?!

Today was a little different though. I got a letter through the post advising me that disability benefits peeps are taking a little longer to process my Disability Living Allowance form as they’ve asked for a letter from my consultant…… who I haven’t actually seen yet! *sigh* I have, however, had two days of preliminary tests in his department so I wrote a responding letter basically saying… ‘hey, he hasn’t even seen me yet, but if you get any info’ on the tests send me a copy coz I know nuffink as yet. Oh and P.S. you do know he’s only looking into the Dys’ stuff right? I don’t have a CRPS consultant as I’ve been living with it for over 13 years.’ Hopefully that’ll clarify things for them (I’ve told them all this already, but hey, reiteration often helps the penny drop, eh?)! Blah blah blah, enough of the serious, get back to the Crazy Socks, woman!

Having to put my reply in the post meant that I had to allocate part of my morning physio’ to getting to the post box and back…. whilst wearing my mismatched socks! Yay!

Totally normal!

Totally normal!

I didn’t meet anyone to talk to, but I did get beeped at by a passing car. Not sure if they were trying to let me know that I’d put odd socks on or whether they were beeping a beware to other drivers about the imminent brightness they were about to encounter, but hey, the socks got noticed!

Well done Melanie for creating a day that many people join in with and which is so effective owing to it’s simple and cheerful foundation. Wonderful stuff honey, and congratulations on your third Crazy Sock Day. I look forward to many more, x